I realize I have really good doctors who I trust. I deal with that fear by talking about with my family. I am still a little afraid that someday my heart may stop working. I’m growing really well and I’m already 5’7”. I only have to go to the cardiologist once a year now and do not have to take any medications. I am able to breathe better and be active. My whole class made me get well cards and gave things for me to play with while I recovered. Family, friends, doctors and teachers would visit me. I remember how supportive my community was. I knew what was going to happen and I didn’t think I was going to live through it.Īnd the next thing I remember is when I woke up. I remember when I laid down on the operation table and they gave me the mask to put me to sleep. I knew they were going to cut me open with a knife. I remember when my doctor told me I needed open-heart surgery and I didn’t believe him. I had my third open-heart surgery at 6 years old and I remember everything. I couldn’t run much and had to sit down a lot when my other friends were playing. I remember what it was like before the surgery. I developed subaortic stenosis again but this time it took years to get bad enough to need surgery again. I think I can remember bits and pieces of my second open-heart surgery when I was 17 months old. Exactly 12 months later I had my second open-heart surgery to clear out the passageway to my aorta from the subaortic stenosis. The doctors told my mom that they fixed my heart defect but there was a small chance I would develop a complication called subaortic stenosis. I was in the hospital for 8 days afterward. I don’t remember my first open-heart surgery. But I know my mom and I know she never gave up. Also, the medicine I was on sometimes made me sick and I would throw up what I ate. This was hard because eating took a lot of energy and I would fall back to sleep after only a small amount. She said she had a mission to feed me 17 ounces of formula a day. My mom says I was really, really skinny and had failure to thrive. This means my oxygenated and de-oxygenated blood would get all mixed together and my heart had to work really hard to get enough oxygen to the rest of my body. I was born with a heart defect where I had a large hole in my heart and both my main arteries pumped blood from the same chamber. but just know, it's not very unusual.My mom has told me about what I was like when I was born. actually, you have permission to be creeped out. So don't be creeped out if i know something random about you. sometimes, i'll pretend like i don't know something about someone just so i don't seem creepy when really i know things that their best friends don't even know just because of my incessant facebook-stalking habits and whatnot. i am definitely more observant than most. but hear me out: when it comes to social cues, how people act and how they talk, think, and move are definitely things i remember. ask me to remember what i read for eleventh grade APUSH and, though i'll try, i'll completely fail. I'm new to this blogging thing, so my sincerest apologies go out to every single one of you who might feel as though they have wasted their time reading what could possibly be the most incredibly pointless, dull, and meaningless blog ever.
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